Multiple Sclerosis (MS) is often associated with symptoms like fatigue, muscle weakness, and difficulty walking, but there are several less usual symptoms that can be just as challenging. As someone who personally navigates Lhermitte’s Sign, Uhthoff’s Phenomenon, itching (pruritus), and vestibular dysfunction, I know firsthand how strange these symptoms can be. Let’s dive into what some of these more unusual symptoms are, how they feel, and how they can be managed effectively.
1. Lhermitte’s Sign
This sudden, electric-shock sensation runs down the back and into the limbs when you bend your neck forward. For me, it’s often unexpected and startling—like a zap reminding me that my body is wired a little differently. It’s not constant, but when it strikes, it can make even simple movements feel intimidating.
Management:
I’ve learned to move more deliberately, avoiding positions that trigger the sensation. (i.e. have good posture)
Physical therapy can help improve posture and reduce strain on the neck.
Medications like gabapentin are also available if the symptom becomes more persistent.
2. Uhthoff’s Phenomenon
This temporary worsening of symptoms caused by heat or increased body temperature can make hot days and exercise feel like an uphill battle. For me, it’s like my body is waving a white flag whenever I overheat, with fatigue or vision problems coming on fast.
Management:
Cooling vests and cold drinks are lifesavers on warmer days.
I try to exercise during cooler times of the day and opt for air-conditioned spaces when possible.
Medications like dalfampridine may also help, depending on your symptoms.
3. Itching (Pruritus)
Itching isn’t your typical dry-skin kind—it’s more like an itch that you can’t quite scratch, and it seems to come out of nowhere. For me, it’s as though my nerves are playing a cruel prank, sending signals that make no sense.
Management:
Cooling creams or compresses may help for some immediate relief.
While antihistamines don’t help much, medications like amitriptyline have made a difference for some people
Practicing mindfulness has been shown to help redirect focus when the itching flares up unexpectedly.
4. Vestibular Dysfunction (Dizziness or Vertigo)
Dizziness or the sensation of spinning can feel disorienting and unpredictable. For me, it’s like the floor is is uneven beneath me even when I’m standing still or on a flat surface—a sensation that can make daily tasks much harder.
Management:
Grounding techniques, like focusing on a fixed point, can help during sudden episodes.
Vestibular rehabilitation therapy has been a game changer for improving balance.
Medications like meclizine can help, especially during more intense episodes. (I never go on a trip without it)
5. The MS Hug
The MS Hug is a tight, squeezing sensation around the chest or abdomen. For me, it feels like I’m wearing a tight compression shirt or getting a bear-hug from a very strong, unwelcome person. It can range from mildly uncomfortable to downright painful, making it hard to breathe or move freely.
Management:
Deep breathing exercises help me relax when the MS Hug sets in.
Gentle stretching or yoga can sometimes ease the discomfort.
Over-the-counter pain relievers or muscle relaxants may be helpful for more severe episodes.
Staying calm and focusing on controlled, even breaths can reduce the intensity of the sensation.
Learn More About MS Symptoms
If you’re looking for more information about these symptoms—or any others you may be experiencing—the National Multiple Sclerosis Society is an excellent resource. Their website provides in-depth guides, research updates, and tips for managing MS in your everyday life. Whether you’re newly diagnosed or have been living with MS for years, it’s a great place to find the latest information and connect with a supportive community. Visit their website at www.nationalmssociety.org.
Final Thoughts: Finding Strength in the Unusual
Living with MS can sometimes feel like a mystery novel with unexpected twists—symptoms like Lhermitte’s Sign, Uhthoff’s Phenomenon, itching, vestibular dysfunction, and the MS Hug add layers to the story that aren’t always easy to predict or explain. But here’s the good news: every twist brings an opportunity to adapt, learn, and grow stronger.
These symptoms may not be visible to others, but they’re very real for those of us living with MS. And while they can be disruptive, they don’t define us. By exploring new tools, treatments, and techniques, we can take back control and live life on our terms.
What’s your experience with these unusual symptoms? Whether you’ve found a trick that works wonders, a product you swear by, or just want to share your story, drop it in the comments. Let’s keep the conversation going—because every shared experience brings us all closer to understanding and thriving with MS!
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