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I Bought Myself a Wheelchair for Christmas 🎄
I bought myself a wheelchair for Christmas. Not out of sadness—out of practicality. It folds, it travels, and it helps me enjoy cruises without overdoing it. I also bought an espresso machine, because balance matters.

Joe Weber
Jan 52 min read


What is PIPE-307? Understanding the Buzz and the Reality
PIPE-307 has been making the rounds on Facebook as a potential MS breakthrough, especially around myelin repair. When I started seeing it everywhere, I did what I always do — stopped scrolling and started researching. This post breaks down what PIPE-307 actually is, what the studies show so far, and how hopeful it’s reasonable to be, based on real data, not social media buzz.

Joe Weber
Dec 22, 20254 min read


I Don't Know How You Are Always So Positive
People often tell me I “always seem so positive.” What they don’t see are the small, everyday adaptations behind that mindset—and why choosing positivity isn’t denial, but a deliberate way of moving forward.

Joe Weber
Dec 15, 20252 min read


CAR T-Cell Therapy: A New Hope for MS?
CAR T-cell therapy is one of the most talked-about emerging treatments in autoimmune disease — and people with MS are paying attention. Here’s what it is, why it matters, and what the early research really means for us.

Joe Weber
Nov 24, 20255 min read


Living with MS Dizziness: When the Floor Feels Uneven
Dizziness with MS isn’t always spinning — sometimes it feels like the floor itself is off-balance. Here’s what that’s like, how I handle it, and why it’s become part of my “normal.”

Joe Weber
Nov 9, 20252 min read


You Were Just Diagnosed with MS. Now What?
Getting diagnosed with MS can feel overwhelming. Here’s what to expect, where to find support, and how to take your first steps forward with confidence.

Joe Weber
Nov 3, 20259 min read


Understanding Sleep and MS
Sleep troubles are all too common with MS—and the effects go far beyond feeling tired. From worsening fatigue and mood swings to brain fog and stress, poor sleep can take a serious toll. In this post, I share what the research says about sleep and MS, along with my own experience of sleepless nights caring for our dog, Ghost, whose health is declining.

Joe Weber
Jul 31, 20253 min read


Finding Clarity in Uncertain Times: Navigating Medicine and Science with MS
Living with a chronic condition like Multiple Sclerosis means relying on research, science, and medicine to guide the way forward. Right...

Joe Weber
Jul 30, 20252 min read


Don’t Fall for the Hype: MS “Cures” That Sound Too Good to Be True Probably Are
Living with a chronic illness like MS means you're always on the lookout for something that might make life a little easier. A way to...

Joe Weber
Jun 24, 20253 min read


Traveling with MS: Tips and Tricks
Get insights on how to make travel more accessible and enjoyable for those living with MS. Living with Multiple Sclerosis doesn’t mean...

Joe Weber
May 30, 20254 min read


Why Building LEGO Is Great Therapy for MS Patients with Hand Movement Issues
If you’re living with Multiple Sclerosis, you know how frustrating it can be when your hands don’t work the way they used to. Whether...

Joe Weber
May 28, 20253 min read


Adapting to the New Normal with MS
Living with multiple sclerosis means constantly adjusting to change. Just when you think you’ve got your routine figured out, MS moves...

Joe Weber
May 21, 20253 min read


A First-of-Its-Kind MS Treatment Moves Closer to FDA Approval
There’s a wave of optimism building in the MS community. Tolebrutinib—a once-daily oral Bruton’s tyrosine kinase inhibitor (BTKi)—has...

Joe Weber
Apr 15, 20252 min read


Flying Southwest with a Mobility Scooter: My First Experience
I recently flew Southwest Airlines for the first time with my mobility scooter (yes, our destination was Disney), and to be honest, I...

Joe Weber
Apr 9, 20254 min read


The Universe Decided to Send Me A Reminder About COVID. COVID with MS Sucks.
Everyone’s journey with multiple sclerosis is different, and the same goes for how we each respond to treatments like Ocrevus and...

Joe Weber
Mar 25, 20254 min read


Congress Cuts MS Research Funding—Here’s What That Means
On March 14, Congress passed a stopgap spending bill for the rest of the 2025 fiscal year. While that might not sound like a big deal on...

Joe Weber
Mar 16, 20252 min read


I Bought a Scooter! Here’s Why I’m Excited to Start Using It.
A little while ago, I wrote about my struggles with mobility and how I was seriously considering getting a scooter. Well, after plenty of...

Joe Weber
Mar 10, 20252 min read


Why a Mobility Scooter Might Be the Best Decision for Me
Living with multiple sclerosis (MS) means constantly adjusting to changes in my body. One of the biggest struggles I’ve faced is walking...

Joe Weber
Mar 3, 20254 min read


March is Multiple Sclerosis Awareness Month: How to Spread Awareness and Support the MS Community
March is Multiple Sclerosis (MS) Awareness Month , a time dedicated to increasing public understanding of MS, supporting those affected,...

Joe Weber
Mar 1, 20253 min read


Promising Research on Myelin Repair and Vision in MS
One of the most frustrating aspects of multiple sclerosis (MS) is the damage it causes to myelin, the protective coating around nerve...

Joe Weber
Feb 5, 20252 min read
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