top of page
My Journey with Mavenclad: A New Chapter in MS Treatment
After years of Ocrevus infusions, I switched to Mavenclad for my MS. One treatment week down, another coming up and then I’m done for the year. Here’s why I made the change, how Mavenclad works and what the experience has been like so far.
Joe Weber
Aug 146 min read
So… About the Last Few Months (MS, Disney Cruise, and so much more.)
Life has a way of changing faster than we expect. Over the past few months, I've said goodbye to my soul dog, explored Alaska, welcomed a mischievous new puppy, made big decisions about my MS and mental health, and even received an unexpected surprise as a writer. Here's where life has taken me.
Joe Weber
Aug 36 min read
Traveling Tips for MS: How to Make Your Trip Easier and More Fun
Traveling can be a blast, right? But when you’re living with multiple sclerosis (MS), it sometimes feels like you need a PhD in logistics just to get out the door. Trust me, I’ve been there—packing, planning, and praying that my energy holds up. But here’s the good news: with a little prep and some insider tips, you can totally enjoy your trip without feeling like you ran a marathon afterward. So, grab your favorite travel mug, and let’s chat about some practical, down-to-ear
Joe Weber
May 254 min read
Managing Travel with MS: Tips and Advice for the Road
Traveling can be a blast, right? But when you’re living with multiple sclerosis (MS), it sometimes feels like your body has its own travel agenda—one that doesn’t always match yours. I get it. The excitement of packing your bags can quickly turn into a stress fest, wondering if your symptoms will flare up or if you’ll have everything you need. But hey, don’t let MS keep you grounded! With a little planning and some insider tips, you can still hit the road (or skies) and enjoy
Joe Weber
May 44 min read
Navigating Life with MS: Managing Multiple Sclerosis Challenges
Living with Multiple Sclerosis is kind of like signing up for a roller coaster… except you never bought the ticket and nobody told you how long the ride lasts. One day, you feel pretty normal. The next? Your legs forget how to leg, your energy disappears out of nowhere, and you’re left wondering what the heck just happened. It’s frustrating. It’s unpredictable. And yeah, sometimes it just flat-out sucks. But if you’re here, you already know that. So let’s talk about how to ac
Joe Weber
Mar 244 min read
How to Participate in MS Awareness Month: Simple Ways to Make a Difference
Every March, you’ll start seeing posts about Multiple Sclerosis Awareness Month. Social media fills up with orange ribbons, statistics, and reminders to support research. All of that is important. But if you’re wondering how to actually participate in MS Awareness Month, the answer doesn’t have to be complicated. As someone living with MS myself, I’ve learned that awareness isn’t just about big events or fundraisers. Sometimes the most meaningful awareness comes from small, e
Joe Weber
Mar 54 min read
Managing Multiple Sclerosis Challenges: Navigating Life with MS
Living with a chronic illness like Multiple Sclerosis is kind of like being on a roller coaster that you didn’t exactly sign up for. One day you’re cruising along, feeling pretty good, and the next, bam! You’re dealing with fatigue, numbness, or brain fog that makes you question if you left your brain in the fridge. But hey, life goes on, and so do we. Let me share some real talk about managing the ups and downs of MS, with a sprinkle of humor and a whole lot of heart. Manag
Joe Weber
Feb 176 min read
I Bought Myself a Wheelchair for Christmas 🎄
I bought myself a wheelchair for Christmas. Not out of sadness—out of practicality. It folds, it travels, and it helps me enjoy cruises without overdoing it. I also bought an espresso machine, because balance matters.
Joe Weber
Jan 53 min read
What is PIPE-307? Understanding the Buzz and the Reality
PIPE-307 has been making the rounds on Facebook as a potential MS breakthrough, especially around myelin repair. When I started seeing it everywhere, I did what I always do — stopped scrolling and started researching. This post breaks down what PIPE-307 actually is, what the studies show so far, and how hopeful it’s reasonable to be, based on real data, not social media buzz.
Joe Weber
Dec 22, 20255 min read
I Don't Know How You Are Always So Positive
People often tell me I “always seem so positive.” What they don’t see are the small, everyday adaptations behind that mindset—and why choosing positivity isn’t denial, but a deliberate way of moving forward.
Joe Weber
Dec 15, 20252 min read
bottom of page