Living with MS Dizziness: When the Floor Feels Uneven

Some mornings start out fine — almost normal, even. I woke up today feeling pretty good, one of those rare mornings where I thought things might actually go smoothly. I got up, started moving around, took out the trash, cooked breakfast, fed the dog — the usual routine.

Then, like clockwork, the dizziness hit. Not the spinning kind that sends you reaching for a wall, but the kind that makes the floor feel uneven, like you’re walking across a boat deck.

It’s strange, but not really. I’m used to it by now. It happens all the time, though lately, it feels like it’s getting worse. I’ve got MRIs coming up soon, but honestly, I’m not expecting to see any changes. There haven’t been since I started Ocrevus, my current MS treatment.

Still, it’s frustrating. I can sit still and feel completely fine, but the second I start doing anything — moving, cleaning, cooking — my balance goes haywire. Thankfully, I’ve got my mobility scooter to lean on when things get bad. It helps, but it doesn’t change the fact that this kind of thing can derail your whole mood.

After something like this happens, I always end up feeling like a grump for the rest of the day. It’s not that I want to be — it’s just hard not to feel defeated when your body suddenly decides to throw you off balance.

If you live with Multiple Sclerosis, you probably know that feeling all too well. That invisible, unpredictable side of the disease that no one else can see but you definitely feel.

For me, this kind of MS dizziness and balance problem has become part of my “normal.”

I’m learning to adjust, to slow down when I need to, and to rely on tools that help me stay independent. But that doesn’t mean it’s easy.

So, if you’ve dealt with this kind of dizziness when you’re up and moving around — even barely active — I’d love to hear how you handle it. Do you push through? Sit down and wait it out? Or have you found little tricks that make it more manageable?

Because even when the floor feels uneven, it helps to know we’re not the only ones trying to find our footing.