Traveling with MS: Tips and True Stories

Traveling is one of those things that can either fill you with excitement or make you want to hide under your blanket. Now, add multiple sclerosis (MS) into the mix, and you might feel like the odds are stacked against you. But guess what? It doesn’t have to be that way. I’ve been there, done that, and learned a ton along the way. So, pull up a chair, grab your favorite drink, and let’s chat about some real-deal travel tips for managing MS, sprinkled with a few true stories that might just make you smile (or at least nod in agreement).

Travel Tips for Managing MS: Planning Ahead is Your Best Friend

If you’re anything like me, the idea of planning a trip sounds about as fun as doing your taxes. But when you have MS, planning isn’t just a good idea - it’s essential. Here’s what I’ve learned:

• Choose your destination wisely. Think about the climate. Hot, humid places can be a nightmare for MS symptoms. I once tried a Disney World vacation in July and ended up spending more time struggling to enjoy the day than actually enjoying it. Lesson learned.

• Book accommodations with accessibility in mind. Elevators, ramps, and easy access to medical facilities can save you a lot of headaches.

• Pack smart. This means more than just your clothes. Bring your medications, a cooling vest if heat is an issue, and any mobility aids you might need. Oh, and don’t forget snacks! Traveling can mess with your blood sugar, and hangry is not a good look on anyone. Trust me.

• Plan your itinerary with rest breaks. I used to try to cram every minute with sightseeing, only to end up exhausted and frustrated. Now, I schedule downtime and it makes all the difference.

  
  

When you take the time to plan ahead, trips just feel easier and more enjoyable. Making sure your hotel setup works for you, having your medications and cooling gear ready to go, and knowing where the nearest pharmacy is can make a huge difference. Instead of stressing over the little stuff, you actually get to relax and enjoy the experience.

Accessible hotel room with ground floor access

What Not to Do When You Have Multiple Sclerosis?

Okay, let’s get real for a second. There are some things you just shouldn’t do when you have MS, especially while traveling. Here’s a quick list of what to avoid:

1. Don’t ignore your body’s signals. If you’re tired, rest. If you’re feeling off, don’t push through just to “keep up.” Trust me. I've been there. It sucks.

2. Avoid overpacking your schedule. Trying to see everything in one trip is a recipe for burnout.

3. Don’t skip your medications or treatments. Even if you’re feeling good, consistency is key.

4. Avoid extreme temperatures. Both heat and cold can trigger symptoms.

5. Don’t forget to communicate your needs. Whether it’s with airline staff, hotel personnel, or travel companions, speaking up can make your trip way easier.

   
   

I once made the mistake of ignoring my fatigue during a Disney Trip. By midday, I was wiped out, and the rest of the trip felt like a blur of discomfort. Lesson? Listen to your body, folks.

Packing Like a Pro: Essentials for Traveling with MS

Packing can feel like a puzzle, especially when you have MS. Here’s my go-to packing list that keeps me prepared without lugging around a suitcase full of stuff:

• Medications and medical supplies: Always bring more than you think you’ll need. I keep a small pill organizer and a copy of my prescriptions.

• Cooling items: Cooling towels, vests, or even a portable fan can be lifesavers.

• Comfortable shoes: Trust me, your feet will thank you. (and i you're like me, the lighter the shoe, the better.)

• Mobility aids: Cane, walker, or wheelchair - whatever you use, make sure it’s travel-friendly.

• Snacks and water: Staying hydrated and fueled is crucial.

• Emergency contact info and medical documents: Keep these handy in case you need quick access.

• Entertainment and comfort items: Books, music, or a favorite pillow can make travel downtime more pleasant.

  
  

Packing light but smart is an art. I once tried to pack everything “just in case” and ended up with a suitcase that weighed more than me. Not fun. Not actually more than me but still way too heavy for air travel.

Organized travel bag with MS essentials

True Stories: Real-Life Travel Wins and Wobbles

Let me share a couple of stories from my own adventures that might resonate with you.

The Great Airport Adventure:

I was flying cross-country and had a layover in a huge airport. I was nervous about navigating it with my scooter. But I asked for assistance at check-in, and they made the entire experience effortless. It was a game-changer. I got to my gate without worry and even had time to grab a coffee. Moral of the story? Don’t be shy about asking for help.

The Unexpected Heatwave:

On a trip to Disney World in the dead of summer, the Florida heat hit me harder than I expected — and honestly, I should’ve expected it. My symptoms flared fast, and I ended up spending a lot of time parked in my wheelchair in whatever shade I could find, misting myself with one of those little spray fans. That trip definitely didn’t end on a high note, but it was a reminder that sometimes the weather wins and you just have to adapt as best you can.

Making Travel Work for You: Tips for a Smooth Journey

Traveling with MS isn’t about pushing yourself to the limit. It’s about making the journey enjoyable and manageable. Here are some final tips that have helped me:

• Use technology. Apps for medication reminders, maps, and even airport navigation can be lifesavers.

• Travel with a buddy. Having someone who understands your needs can ease stress.

• Stay hydrated and eat well. It sounds basic, but it’s easy to forget when you’re on the go.

• Prepare for delays. Pack extra snacks, meds, and patience.

• Keep a positive mindset. Some days will be tougher than others, and that’s okay.

  
  

If you want to dive deeper into this topic, check out Traveling with MS for more tips and stories from people who get it.

Traveling with MS might have its challenges, but it’s also full of opportunities to discover new places, meet new people, and prove to yourself that you’re capable of amazing things. So, pack your bags (smartly), plan ahead, and get ready for your next adventure. You’ve got this!